However, a lot of work has been done on how to maintain a meaningful lifestyle and there are a number of recognised methods of retaining a positive outlook.
Here are just a handful of the most effective ways of coping:
1/ Reading about other people with dementia.
There are numerous blogs about dementia. Dementia Diaries (https://dementiadiaries.org/) gives a voice to people with dementia through more than three thousand audio and video diaries and is a rich source of insight and inspiration. The Alzheimer’s Society runs another excellent and varied blog, with lots of real-life insight, plus some really positive pieces on the search for a cure and much more (https://www.alzheimers.org.uk/blog). Let’s Talk About Dementia is a long-running blog run by Alzheimer’s Scotland and is another big resource of stories about dementia from many angles (https://letstalkaboutdementia.wordpress.com/)
2/ Using recognised coping strategies
These include establishing good sleep patterns, with lots of daylight and exercise in the daytime, avoiding caffeine and alcohol in the evening and a good sleeping environment at bedtime, all underpinned with a solid routine. Good nutrition and drinking habits, again with an emphasis on routine and quality. Support and understanding from carers: carers should be well-versed in the principles of supporting a person with dementia – simple things like being reassuring and understanding if anxiety is a problem; not challenging repetitious behaviour or questioning, but instead gently discussing issues and trying to identify underlying themes or anxieties, which can be softened with reassurance.
3/ Spending time with the people you love
One of the most reassuring things to do is to spend time with friends, family and people you love. Quiet, calming and familiar environments – favourite chairs in familiar rooms – add to the general sense of reassurance and familiarity, which can be very comforting.
4/ continuing to do the things that really matter to you
Continuing to pursue favourite activities and hobbies is a great way to both calm and reassure and individual. Listen to favourite music and dancing to familiar tunes can work very well. Don’t dismiss the idea of developing new interests or trying activities which appeal but which you’ve never previously got round to. Again, being absorbed and involved is a good place to be.
5/ Participating in research into dementia
A dementia diagnosis can lead to a sense of being helpless or not in control. One of the best ways of coping this is to take positive action and by participating in research about the condition. There are opportunities to do this online through the Alzheimer’s Society website, where there’s a page (https://www.alzheimers.org.uk/research/our-research/take-part-dementia-research) dedicated to the subject.
Bluebird Care Calderdale
We provide Home Care, Night Care, Live-in Care and a range of other support in the Calderdale area, including Halifax, Sowerby Bridge, Brighouse, Elland, Hebden Bridge and Todmorden.
